Things that suck about heart failure:
1. learning more new terms/concepts than I have since college. Or at least since we became parents.
2. It's freakng called heart FAILURE. How does that even sound fun?
3. Trying for a low-sodium diet. This is a respectable goal, but do you have any idea how hard it is? Shaun's supposed to have 2000 mg or less of sodium a day, on average. Which isn't too bad, considering some people can't have any salt at all, and the US RDA of sodium is 2400 mgs/ day. But one slice of cheese pizza has 702 mg of sodium. A can of Campbell's chunky soup has roughly 1600 mg of sodium. One egg has 65 mg. One cup of milk has 135. How did this happen? Why is it everywhere? Why is it in milk but not in whipping cream?
4. Seeing the horrified faces of my nursing students when I tell them Shaun's ejection fraction is 20%.
5. Four doctors appointments a week.
6. It's damn hard to plan a date when you can't go out to dinner together because everything at every restaurant is made, primarily , of salt.
Fun things about heart failure:
1. He might get an implanted difibulator. You know, a difibulator is the kind of thing that Dr. Green would use on ER right after he shouted "Clear!" And everyone had to stop touching the patient. Shaunie could have one of those implanted. Like a magic power, kind of.
2. Shaun has a wee bottle of nitroglyerin he's supposed to take with him wherever he goes.
3. This makes me think of us as Hepburn and Fonda in On Golden Pond.
4. That means I get to be Hepburn.
5. Our insurance covers 3 of the 4 weekly doctors appointments (and I feel very, very fortunate for this).
6. Heart in spanish is El Corazon. El Corazon is an album I enjoy by Steve Earle.
Okay, it's a stretch to come up with 6 fun things about heart failure. But I'm trying.
A blessed fourth of July to you and yours. Be careful of waterballoons. Love all y'all.
1 comment:
Looks like you guys have your work cut out for you. I am sure you are up to the task. Loved your anniversary blog, Jen. You obviously care deeply about each other and you have a wonderful daughter to motivate you to do what has to be done.
Love to you all. skj
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